Redressing power imbalances in care for people with intellectual disabilities

Authors Berit Godfroij, Sascha van Gijzel, Henk Roelfsema, Jean-Pierre Wilken, Anita Cremers, Rosa de Vries
Published in C. Craig, & P. Chamberlain (Eds.). International Conference Design4Health2024: Equilibrium in a time of permacrisis, Conference Abstracts Volume 1
Publication date 2024
Research groups Co-design, Participation, Care and Support
Type Lecture

Summary

In the Netherlands, client and family participation in care for people with intellectual disabilities has been in vogue for a long time, and increasingly receives attention (KPMG and Vilans 2017). However, the perspective and experiential knowledge of service users and relatives is often still insuBiciently used for the co-creation of care. The professional perspective is often still dominant. In addition, professionals mainly focus on clients and less on relatives, even though relatives often play an important role in the client’s (quality of) life (Wiersma 2017). The project ‘Inclusive Collaboration in Disability Care’[1] (ICDC) focusses on enhancing equal communication between people with intellectual disabilities, their relatives, and professional caregivers, and hence contributes to redressing power imbalances in long term care. It investigates the question: “How can the triangle of client, relative and professional caregiver together co-create better care and support?”.

On this publication contributed

Language English
Published in C. Craig, & P. Chamberlain (Eds.). International Conference Design4Health2024: Equilibrium in a time of permacrisis, Conference Abstracts Volume 1
Key words co-creation, community of development, disability care, intellectual disability, inclusive research
Page range 63-67

Berit Godfroij

Berit Godfroij | Researcher | Co-design research group

Berit Godfroij

  • Researcher
  • Research group: Co-design